Neurodevelopmental Research Recruitment
Help contribute to our understanding of developmental concerns!
Goals of this project
Improve investigation of neurodevelopmental disorder (NDD) research questions posed by researchers, clinicians and families by providing a streamlined way of recruiting interested participants.
Give families or community organizations opportunities to participate in research that has been determined to have a good likelihood of having impact on knowledge and treatment of NDD.
Neurodevelopmental disorders (NDD) are a group of conditions that describe developmental concerns in children. These include conditions such as autism spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD), and fetal alcohol spectrum disorder (FASD). However, there is still so much we don’t understand about them. For example, how children present with Autism and what services or treatments they need, vary from person to person. For this reason, there are many studies by different researchers throughout the University of Calgary looking at different aspects of NDD and related developmental concerns. Reaching children to take part in this research can be hard. It can also be hard for families interested in research to learn about studies that apply to them. This project will connect families with children affected by NDD with Researchers at the University of Calgary that have important NDD-related studies.
Your child can be included if:
They were diagnosed with or are being assessed for a neurodevelopmental disorder such as ASD, ADHD, or FASD by a clinician familiar with neurodevelopmental disorders.
They are Age 1 to 17 years-old at time of diagnosis.
There is a legal decision-maker that is able to supply consent and contact information.
If you are interested you can enter information HERE. Your contact information will then be given to researchers that have a specific study that may be of interest to your family. Researchers will contact you and tell you about the study and you can decide if you would like to participate. Families can also learn about research studies on the Research studies page. Families will not be contacted more than once every three months and can withdraw their name at any time.
To be enrolled go to the REDCAP survey site to read more information and complete the survey.
This study has been approved by the Calgary Conjoint Health Ethics Board (REB18-1194).